IAN has Duchenne Muscular Dystrophy the doctor tells my parents, a severe, fatal muscle-wasting disease that will lead to an early death. This is a chronicle of the first twenty five years of my life living with DMD read through as my ability to walk disappears, as my breathing deteriorates, as my heart fails and as I become increasingly paralysed. Despite all the ventilators and mini tracheotomies I've still got my positivity and determination to see me through. I'm fighting back by campaigning and lobbying all the while helping a charity try to rid the world of Duchenne's forever.